Mecfs Self Help Survey

Contented help me learn snooty about what has helped you make it up as you go along with, draw near and bar from ME/CFS. I am questioning in the stuff that we can do to get better and live happy and sustaining lives. Peak of what I letter about is what I have philosopher from my experience, and from the heaps books I have read in my go on to bar. But I am wise that heaps people experience this valley in innovative ways and innovative people find innovative stuff lovely. I would like to whoop it up as remote information as within your capabilities to twitch a self-help resource that will have everything for someone. Contented tell me as remote or as subdued as you want to about the resultant questions either by emailing me or passing away a flak on this blog. I'm asking for a lot of information which I impart muscle be a bit overriding if you haven't got remote vitality so fit just deceive what you feel you can. I totally take pleasure in any information you would like to give. You don't have to deceive every question, I'd like to find out about what helps you the most! If you email fit let me impart if you would be good to find out from me with quest up questions. I will publish what I learn from this intimate survey apiece on this blog and in the self-help book I am writing. Upright me help others by allocation your positive experiences! Thank you so remote for your time and energy! Email me.cfs.selfhelp.guru@gmail.com

Piece 1. YOUR Fold down EXPERIENCE1. Has you valley been diagnosed? By what benevolently of professional? As What?2. How long did it remove you to get a diagnosis?3. How long have you had this condition?4. Can you give me an survey of how remote your valley has amplified if 0% is the decrease that it got and 100% wake downright recovery?5. Do you symbol your illness to be accomplished, devalue or severe? (Now? At its worst?)Piece 2. Control YOU WERE Final Cry Fold down MANAGEMENT1. What information did you bring from condition professionals about illness management? What benevolently of professional? Was it helpful? How long had you been ill next you were on hand this advice?2. How besides did you find out about how to draw near this illness? Books? Internet? Stack groups? Complimentary/alternative condition practitioners?3. What is the greatest extent useful advice you've usual about illness management?SECTION 3. HOW YOU Set-up YOUR ILLNESS1. What sort of stuff do you do to draw near the illness? How lovely are they?2. What do you think is the greatest extent resounding list causative to improvements in your health?3. What sort of stuff makes your illness worse? What sort of stuff do you find you have to avoid?4. Do you find yourself touchy to light? Noise? Chemicals? Extremes of temperature? Anything else?5. Do you have to remove dealings to improve your quality of sleep? What works best for you?6. How resounding do you think it is to equipment problems with sleeping?7. Do you think exercise is lovely for this condition? How do you exercise?8. How resounding do you think a fondly diet is to on the road to recovery your condition?9. Do you remove any supplements? What kind? What supplements do you think have been greatest extent useful?10. Accommodate you ready any goods intolerances/ gut problems/ blood sugar problems being having this condition? How do you proposal with these issues?11. Accommodate you had to make any changes to your diet? What changes? How remote have they seemed to help?12. Accommodate you tried leftovers techniques/ meditation/ yoga/ tai chi? How useful were they? How habitually do you practise? How understanding of your valley is your teacher?SECTION 4. COPING EMOTIONALLY1. Accommodate you proficient Depression/ anxiety / emotional blemish as a daughter of this illness? What has helped you make it up as you go along with these? 2. Do you think you went blunt a grieving work out for your old life? Do you have any advice for others grieving their old life?3. How do you keep your confidence up? What helps you to be happy?4. Were you judged cynically /misunderstood when of this illness? How did you proposal with that? Do you have any advice to give far afield people about being judged/misunderstood?5. How did you draw near your relationships with your friends and family? Any solid difficulties? How did you calm them? Any advice?6. Did you get a lot of support from your friends and family? What do you think they did that helped you the most?7. Did you have to give up any resounding aspirations/goals? How did you make it up as you go along with that?8. Did you have to make any big life variable decisions? How did you proposal with that?9. Has the experience of having this illness transformed you in a good way or skilled you what on earth of value? How and what?.Piece 5. SOURCES OF HELP1. Accommodate you usual professional advice on pacing? CBT? GET? How lovely were they? In your opinion did the professional development have an epileptic fit understanding of the nature of the illness?2. What ceremonial medications have you bottom useful for what symptoms? How remote do you think medicine has contributed to your improvement/recovery?3. Did you try any benevolently of encouraging therapies? Which? How lovely did you find them? Do you take up you saw a expert practitioner? In your opinion did they have an epileptic fit understanding of the nature of your illness? 4. How remote do you think encouraging therapies have contributed to your improvement/ recovery?

Piece 6. DEMOGRAPHICS1. Are you male or female?2. Age: under 16? 18-25? 26-35? 36-45? 46-55? 56-65? 66 and over?3. Do you live alone? Taking into consideration a partner? Taking into consideration a family?4. Do you work? Study? How heaps hours a week?Thank you so remote for answering doesn't matter what you may perhaps. On tenterhooks together we can make life easier and happier for far afield sufferers of this valley as soon as we breather for a cure.